Similar Posts
Spotlight on LSD’s costly impact
TO UNDERSTAND her subjects, full-time artist Chiang Sook Siang visited the clinic where they were receiving their doses of enzyme replacement therapy every day for a month. That is why…
Tulang rapuh hati waja
PETALING JAYA: “Penyakit dialami menyebabkan saya tidak dapat bergiat aktif dalam sukan ketika di sekolah walaupun ada keinginan untuk mencuba seperti individu lain. “Namun, saya tidak berputus asa dan mencari…
Living Life in The Face of Muscular Atrophy
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
He just can’t play like the rest
While other children fully and freely enjoy their childhood, seven-year-old Muhammad Hazril Mikhail Hizar is unable to due to a rare skin disease. The boy suffers from epidermolysis bullosa or…
Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
This Mother Is Fighting For More Funding To Treat Rare Diseases In Budget 2019
The Pakatan Harapan government is now less than a month away from tabling Budget 2019, its maiden Supply Bill The bill will be tabled on 2 November, and debates on…
