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HIS is an open letter to the minister and Ministry of Education. Inclusive education of children with disabilities is accepted internationally as a standard and right for all children. While…
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Insurance coverage for rare diseases
THE Malaysian Alliance of Rare Diseases Foundation takes note of the government’s effort to provide better healthcare coverage for the B40 group through a social health insurance scheme. Although the…
Competing to prove a point
NEVER let a medical condition stop you from living life to the fullest. This is the message Sofia Lovi Ramasamy, Nik Norziehana Che Isa, and Nor Athira Sujino want to…
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
