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Caution for rare disease patients
PEOPLE living with rare diseases face many difficulties in getting the diagnosis and care they need. These difficulties are now exacerbated by the Covid-19 pandemic. Many people with rare diseases…
工程师盼唤醒关注溶酶体病症
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Living Life in The Face of Muscular Atrophy
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
Differently-abled banker wears Miss Amazing crown
SOFIA Lovi Ramasamy proved that being differently-abled is no barrier when she was crowned the very first Miss Amazing Malaysia (MAM). Winning the title at the inaugural event, held at…
You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
Tulang rapuh hati waja
PETALING JAYA: “Penyakit dialami menyebabkan saya tidak dapat bergiat aktif dalam sukan ketika di sekolah walaupun ada keinginan untuk mencuba seperti individu lain. “Namun, saya tidak berputus asa dan mencari…
