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The Rare Diseases Day Symposium: Towards a National Policy
On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to…
William Syndrome: All Q&A Answered (Malaysia)
Many asked about April. The elder she get, her slow development is more prominent to the public. William Syndrome is still a stranger to many. Here I am answering some…
Tulang rapuh hati waja
PETALING JAYA: “Penyakit dialami menyebabkan saya tidak dapat bergiat aktif dalam sukan ketika di sekolah walaupun ada keinginan untuk mencuba seperti individu lain. “Namun, saya tidak berputus asa dan mencari…
Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
Care of people with rare diseases should not be compromised in the time of Covid-19
The Covid-19 pandemic is a challenging time for all. Rare Diseases Alliance Foundation Malaysia (RDAFM) fully supports the frontline health professionals in the fight to contain this virus and to…
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
