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Having a rare genetic disease does not stop Nur Fariza Abu Hassan from creating beautiful, almost life-like art that has not gone unnoticed on social media. Her pictures of landscapes,…
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In conjunction with this year’s World Rare Disease Day at the end of this month, the Malaysian Rare Disorders Society (MRDS) is collaborating with PuakPayong to organise a “Mingle and…
Global Rare Disease Commission Creates Roadmap to End the Diagnostic Odyssey
The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease has released a roadmap detailing three tracks focused on patient and family empowerment, technology, and genetic consultation. All of which…
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