Similar Posts
Health Ministry urged to approve drug to help patients with spinal muscular atrophy
The Health Ministry should approve a drug named Spinraza that can help people with spinal muscular atrophy (SMA), said WeCare Journey co-founder Yap Sook Yee. “On December 23, 2016, the…
工程师盼唤醒关注溶酶体病症
工程师盼唤醒关注溶酶体病症．单骑1千公里请愿 Read more at Sin Chew
This Mother Is Fighting For More Funding To Treat Rare Diseases In Budget 2019
The Pakatan Harapan government is now less than a month away from tabling Budget 2019, its maiden Supply Bill The bill will be tabled on 2 November, and debates on…
The Rare Diseases Day Symposium: Towards a National Policy
On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to…
Taking stock of rare disease
Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their…
