On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to push for a National Policy for Rare Diseases. As part of IDEAS’ Championing for the Rare Project, this symposium aimed to highlight the difficulties faced in accessing pharmaceutical treatment options for rare diseases, orphan drugs, and potential funding options to resolve this. IDEAS’ Championing for Rare project is an opportunity for the engagement of multiple stakeholders to provide a diversity of perspectives towards the proposed solutions for rare diseases.

Read more at Institute for Democracy and Economic Affairs (IDEAS)

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