{"id":1608,"date":"2018-10-01T16:39:04","date_gmt":"2018-10-01T08:39:04","guid":{"rendered":"https:\/\/rarediseasemalaysia.com\/cabaran-dan-pengesyoran\/"},"modified":"2022-12-21T15:18:34","modified_gmt":"2022-12-21T07:18:34","slug":"cabaran-dan-pengesyoran","status":"publish","type":"page","link":"https:\/\/rarediseasemalaysia.com\/ms\/cabaran-dan-pengesyoran\/","title":{"rendered":"Cabaran dan Pengesyoran"},"content":{"rendered":"<style>#kt-layout-id_79b5ae-1e > .kt-row-column-wrap{align-content:start;}:where(#kt-layout-id_79b5ae-1e > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:start;}#kt-layout-id_79b5ae-1e > .kt-row-column-wrap{column-gap:var(--global-kb-gap-md, 2rem);row-gap:var(--global-kb-gap-md, 2rem);padding-top:var( --global-kb-row-default-top, 25px );padding-bottom:var( --global-kb-row-default-bottom, 25px );padding-top:8rem;padding-bottom:8rem;grid-template-columns:minmax(0, 1fr);}#kt-layout-id_79b5ae-1e > .kt-row-layout-overlay{opacity:0.30;}@media all and (max-width: 1024px){#kt-layout-id_79b5ae-1e > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}@media all and (max-width: 767px){#kt-layout-id_79b5ae-1e > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}<\/style>\n<div class=\"wp-block-kadence-rowlayout alignfull\" id=\"The-Challenges-and-Recommendations\"><div id=\"kt-layout-id_79b5ae-1e\" class=\"kt-row-layout-inner kt-row-has-bg kt-layout-id_79b5ae-1e has-theme-palette-8-background-color\"><div class=\"kt-row-column-wrap kt-has-1-columns kt-gutter-default kt-v-gutter-default kt-row-valign-top kt-row-layout-equal kt-tab-layout-inherit kt-m-colapse-left-to-right kt-mobile-layout-row\"><style>.kadence-column_d0d37b-a1 > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_d0d37b-a1 > .kt-inside-inner-col,.kadence-column_d0d37b-a1 > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_d0d37b-a1 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_d0d37b-a1 > .kt-inside-inner-col{flex-direction:column;}.kadence-column_d0d37b-a1 > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_d0d37b-a1 > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_d0d37b-a1{position:relative;}@media all and (max-width: 1024px){.kadence-column_d0d37b-a1 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_d0d37b-a1 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-1 kadence-column_d0d37b-a1\"><div class=\"kt-inside-inner-col\">\n<p class=\"has-text-align-center\">\u201cChallenges faced by Malaysia Rare Disease communities and Recommendations\u201d ditulis oleh<br\/><strong>Prof Thong Meow Keong<\/strong> dan <strong>Dr. Azlina Ahmad-Annuar<\/strong>.<\/p>\n\n\n\n<p class=\"has-text-align-center\">Kandungan ini diterbitkan sebagai<br\/><a href=\"http:\/\/www.ideas.org.my\/brief-ideas-no-10-national-policy-on-rare-diseases-living-with-dignity-in-search-of-solutions-for-rare-diseases\/\">Brief <strong>IDEAS<\/strong> No 10 \u2013National Policy on Rare Diseases Living with Dignity: In Search of Solutions for Rare Diseases.<\/a><\/p>\n\n\n<style>#kt-layout-id_852532-79 > .kt-row-column-wrap{align-content:center;}:where(#kt-layout-id_852532-79 > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:center;}#kt-layout-id_852532-79 > .kt-row-column-wrap{column-gap:var(--global-kb-gap-md, 2rem);row-gap:var(--global-kb-gap-md, 2rem);padding-top:var( --global-kb-row-default-top, 25px );padding-bottom:var( --global-kb-row-default-bottom, 25px );padding-top:0%;padding-bottom:0%;padding-left:5%;padding-right:5%;}#kt-layout-id_852532-79 > .kt-row-column-wrap > div:not(.added-for-specificity){grid-column:initial;}#kt-layout-id_852532-79 > .kt-row-column-wrap{grid-template-columns:repeat(5, minmax(0, 1fr));}#kt-layout-id_852532-79 > .kt-row-layout-overlay{opacity:0.30;}@media all and (max-width: 1024px){#kt-layout-id_852532-79 > .kt-row-column-wrap{padding-right:10%;padding-left:10%;grid-template-columns:repeat(5, minmax(0, 1fr));}}@media all and (max-width: 1024px){#kt-layout-id_852532-79 > .kt-row-column-wrap > div:not(.added-for-specificity){grid-column:initial;}}@media all and (max-width: 767px){#kt-layout-id_852532-79 > .kt-row-column-wrap{padding-left:3%;padding-right:3%;grid-template-columns:minmax(0, 1fr);}#kt-layout-id_852532-79 > .kt-row-column-wrap > div:not(.added-for-specificity){grid-column:initial;}}<\/style>\n<div class=\"wp-block-kadence-rowlayout alignnone\"><div id=\"kt-layout-id_852532-79\" class=\"kt-row-layout-inner kt-layout-id_852532-79\"><div class=\"kt-row-column-wrap kt-has-5-columns kt-gutter-default kt-v-gutter-default kt-row-valign-middle kt-row-layout-equal kt-tab-layout-inherit kt-m-colapse-left-to-right kt-mobile-layout-row\"><style>.kadence-column_d8dab0-ad > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_d8dab0-ad > .kt-inside-inner-col,.kadence-column_d8dab0-ad > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_d8dab0-ad > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_d8dab0-ad > .kt-inside-inner-col{flex-direction:column;}.kadence-column_d8dab0-ad > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_d8dab0-ad > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_d8dab0-ad{position:relative;}@media all and (max-width: 1024px){.kadence-column_d8dab0-ad > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_d8dab0-ad > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-1 kadence-column_d8dab0-ad\"><div class=\"kt-inside-inner-col\"><style>.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_6e3311-72{max-width:100vw;}.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap{max-width:unset;}#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);max-width:100vw;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-top:2%;margin-right:2%;margin-bottom:2%;margin-left:2%;}#kt-info-box_6e3311-72 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.kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;}#kt-info-box_6e3311-72 .kt-infobox-textcontent h4.kt-blocks-info-box-title{font-size:1.2rem;padding-top:0px;padding-right:15px;padding-bottom:0px;padding-left:15px;margin-top:10px;margin-right:0px;margin-bottom:10px;margin-left:0px;}#kt-info-box_6e3311-72 .kt-blocks-info-box-learnmore{color:var(--global-palette9, #ffffff);background:var(--global-palette2, #2B6CB0);border-color:#555555;border-radius:20px;font-size:13px;font-weight:bold;border-width:0px 0px 0px 0px;padding-top:8px;padding-right:16px;padding-bottom:8px;padding-left:16px;margin-top:0px;margin-right:0px;margin-bottom:20px;margin-left:0px;}#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-learnmore,#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap .kt-blocks-info-box-learnmore:focus{color:#ffffff;background:var(--global-palette1, #3182CE);border-color:#444444;}#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}@media all and (max-width: 1024px){#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 1024px){#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 767px){#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_6e3311-72 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}<\/style>\n<div id=\"kt-info-box_6e3311-72\" class=\"wp-block-kadence-infobox\"><a class=\"kt-blocks-info-box-link-wrap info-box-link kt-blocks-info-box-media-align-top kt-info-halign-center\" href=\"https:\/\/rarediseasemalaysia.com\/challenges-and-recommendations\/lack-of-recognition-and-inclusiveness\/\"><div class=\"kt-blocks-info-box-media-container\"><div class=\"kt-blocks-info-box-media kt-info-media-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic-container\"><div class=\"kadence-info-box-image-intrisic kt-info-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/qzvtbe_whsw-768x512.jpg\" alt=\"\" width=\"768\" height=\"512\" class=\"kt-info-box-image wp-image-203\" srcset=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/qzvtbe_whsw-768x512.jpg 768w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/qzvtbe_whsw-150x100.jpg 150w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/qzvtbe_whsw-350x233.jpg 350w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/qzvtbe_whsw.jpg 1600w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/div><\/div><\/div><\/div><\/div><div class=\"kt-infobox-textcontent\"><h4 class=\"kt-blocks-info-box-title\">Kekurangan Pengiktirafan dan Keterangkuman<\/h4><p class=\"kt-blocks-info-box-text\"><\/p><div class=\"kt-blocks-info-box-learnmore-wrap\"><span class=\"kt-blocks-info-box-learnmore\">Ketahui Lebih Lanjut<\/span><\/div><\/div><\/a><\/div>\n<\/div><\/div>\n\n\n<style>.kadence-column_d19ed6-f9 > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_d19ed6-f9 > .kt-inside-inner-col,.kadence-column_d19ed6-f9 > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_d19ed6-f9 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_d19ed6-f9 > .kt-inside-inner-col{flex-direction:column;}.kadence-column_d19ed6-f9 > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_d19ed6-f9 > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_d19ed6-f9{position:relative;}@media all and (max-width: 1024px){.kadence-column_d19ed6-f9 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_d19ed6-f9 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-2 kadence-column_d19ed6-f9\"><div class=\"kt-inside-inner-col\"><style>.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_515fe9-b9{max-width:100vw;}.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap{max-width:unset;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);max-width:100vw;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-top:2%;margin-right:2%;margin-bottom:2%;margin-left:2%;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);}#kt-info-box_515fe9-b9.wp-block-kadence-infobox{max-width:100%;}#kt-info-box_515fe9-b9 .kadence-info-box-image-inner-intrisic-container .kadence-info-box-image-intrisic{padding-bottom:66.7969%;width:768px;height:0px;max-width:100%;}#kt-info-box_515fe9-b9 .kadence-info-box-icon-container .kt-info-svg-icon, #kt-info-box_515fe9-b9 .kt-info-svg-icon-flip, #kt-info-box_515fe9-b9 .kt-blocks-info-box-number{font-size:50px;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-media-container{margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;}#kt-info-box_515fe9-b9 .kt-infobox-textcontent h4.kt-blocks-info-box-title{font-size:1.2rem;padding-top:0px;padding-right:15px;padding-bottom:0px;padding-left:15px;margin-top:10px;margin-right:0px;margin-bottom:10px;margin-left:0px;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-learnmore{color:var(--global-palette9, #ffffff);background:var(--global-palette2, #2B6CB0);border-color:#555555;border-radius:20px;font-size:13px;font-weight:bold;border-width:0px 0px 0px 0px;padding-top:8px;padding-right:16px;padding-bottom:8px;padding-left:16px;margin-top:0px;margin-right:0px;margin-bottom:20px;margin-left:0px;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-learnmore,#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap .kt-blocks-info-box-learnmore:focus{color:#ffffff;background:var(--global-palette1, #3182CE);border-color:#444444;}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}@media all and (max-width: 1024px){#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 1024px){#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 767px){#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_515fe9-b9 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}<\/style>\n<div id=\"kt-info-box_515fe9-b9\" class=\"wp-block-kadence-infobox\"><a class=\"kt-blocks-info-box-link-wrap info-box-link kt-blocks-info-box-media-align-top kt-info-halign-center\" href=\"https:\/\/rarediseasemalaysia.com\/challenges-and-recommendations\/lack-of-awareness-and-comprehensive-healthcare-provisions\/\"><div class=\"kt-blocks-info-box-media-container\"><div class=\"kt-blocks-info-box-media kt-info-media-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic-container\"><div class=\"kadence-info-box-image-intrisic kt-info-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/xnrhhomhru4-768x513.jpg\" alt=\"\" width=\"768\" height=\"513\" class=\"kt-info-box-image wp-image-204\" srcset=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/xnrhhomhru4-768x513.jpg 768w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/xnrhhomhru4-150x100.jpg 150w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/xnrhhomhru4-350x234.jpg 350w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/xnrhhomhru4.jpg 1600w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/div><\/div><\/div><\/div><\/div><div class=\"kt-infobox-textcontent\"><h4 class=\"kt-blocks-info-box-title\">Kurangnya Kesedaran dan Peruntukan Kesihatan Komprehensif<\/h4><p class=\"kt-blocks-info-box-text\"><\/p><div class=\"kt-blocks-info-box-learnmore-wrap\"><span class=\"kt-blocks-info-box-learnmore\">Ketahui Lebih Lanjut<\/span><\/div><\/div><\/a><\/div>\n<\/div><\/div>\n\n\n<style>.kadence-column_2682c9-f6 > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_2682c9-f6 > .kt-inside-inner-col,.kadence-column_2682c9-f6 > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_2682c9-f6 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_2682c9-f6 > .kt-inside-inner-col{flex-direction:column;}.kadence-column_2682c9-f6 > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_2682c9-f6 > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_2682c9-f6{position:relative;}@media all and (max-width: 1024px){.kadence-column_2682c9-f6 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_2682c9-f6 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-3 kadence-column_2682c9-f6\"><div class=\"kt-inside-inner-col\"><style>.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_6d31be-61{max-width:100vw;}.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap{max-width:unset;}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);max-width:100vw;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-top:2%;margin-right:2%;margin-bottom:2%;margin-left:2%;}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);}#kt-info-box_6d31be-61.wp-block-kadence-infobox{max-width:100%;}#kt-info-box_6d31be-61 .kadence-info-box-image-inner-intrisic-container .kadence-info-box-image-intrisic{padding-bottom:75%;width:768px;height:0px;max-width:100%;}#kt-info-box_6d31be-61 .kadence-info-box-icon-container .kt-info-svg-icon, #kt-info-box_6d31be-61 .kt-info-svg-icon-flip, #kt-info-box_6d31be-61 .kt-blocks-info-box-number{font-size:50px;}#kt-info-box_6d31be-61 .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;}#kt-info-box_6d31be-61 .kt-blocks-info-box-media-container{margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;}#kt-info-box_6d31be-61 .kt-infobox-textcontent h4.kt-blocks-info-box-title{font-size:1.2rem;padding-top:0px;padding-right:15px;padding-bottom:0px;padding-left:15px;margin-top:10px;margin-right:0px;margin-bottom:10px;margin-left:0px;}#kt-info-box_6d31be-61 .kt-blocks-info-box-learnmore{color:var(--global-palette9, #ffffff);background:var(--global-palette2, #2B6CB0);border-color:#555555;border-radius:20px;font-size:13px;font-weight:bold;border-width:0px 0px 0px 0px;padding-top:8px;padding-right:16px;padding-bottom:8px;padding-left:16px;margin-top:0px;margin-right:0px;margin-bottom:20px;margin-left:0px;}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-learnmore,#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap .kt-blocks-info-box-learnmore:focus{color:#ffffff;background:var(--global-palette1, #3182CE);border-color:#444444;}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}@media all and (max-width: 1024px){#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 1024px){#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 767px){#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_6d31be-61 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}<\/style>\n<div id=\"kt-info-box_6d31be-61\" class=\"wp-block-kadence-infobox\"><a class=\"kt-blocks-info-box-link-wrap info-box-link kt-blocks-info-box-media-align-top kt-info-halign-center\" href=\"https:\/\/rarediseasemalaysia.com\/challenges-and-recommendations\/lack-of-protection-of-the-rights-and-dignity-of-individuals-with-rare-diseases\/\"><div class=\"kt-blocks-info-box-media-container\"><div class=\"kt-blocks-info-box-media kt-info-media-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic-container\"><div class=\"kadence-info-box-image-intrisic kt-info-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/5oeprkurtam-768x576.jpg\" alt=\"\" width=\"768\" height=\"576\" class=\"kt-info-box-image wp-image-245\" srcset=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/5oeprkurtam-768x576.jpg 768w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/5oeprkurtam-150x113.jpg 150w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/5oeprkurtam-350x263.jpg 350w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/5oeprkurtam.jpg 1600w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/div><\/div><\/div><\/div><\/div><div class=\"kt-infobox-textcontent\"><h4 class=\"kt-blocks-info-box-title\">Kurangnya Perlindungan Hak dan Maruah Individu dengan Penyakit Jarang Jumpa<\/h4><p class=\"kt-blocks-info-box-text\"><\/p><div class=\"kt-blocks-info-box-learnmore-wrap\"><span class=\"kt-blocks-info-box-learnmore\">Ketahui Lebih Lanjut<\/span><\/div><\/div><\/a><\/div>\n<\/div><\/div>\n\n\n<style>.kadence-column_d5ae13-23 > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_d5ae13-23 > .kt-inside-inner-col,.kadence-column_d5ae13-23 > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_d5ae13-23 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_d5ae13-23 > .kt-inside-inner-col{flex-direction:column;}.kadence-column_d5ae13-23 > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_d5ae13-23 > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_d5ae13-23{position:relative;}@media all and (max-width: 1024px){.kadence-column_d5ae13-23 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_d5ae13-23 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-4 kadence-column_d5ae13-23\"><div class=\"kt-inside-inner-col\"><style>.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_4af8f9-a0{max-width:100vw;}.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap{max-width:unset;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);max-width:100vw;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-top:2%;margin-right:2%;margin-bottom:2%;margin-left:2%;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);}#kt-info-box_4af8f9-a0.wp-block-kadence-infobox{max-width:100%;}#kt-info-box_4af8f9-a0 .kadence-info-box-image-inner-intrisic-container .kadence-info-box-image-intrisic{padding-bottom:66.6667%;width:768px;height:0px;max-width:100%;}#kt-info-box_4af8f9-a0 .kadence-info-box-icon-container .kt-info-svg-icon, #kt-info-box_4af8f9-a0 .kt-info-svg-icon-flip, #kt-info-box_4af8f9-a0 .kt-blocks-info-box-number{font-size:50px;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-media-container{margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;}#kt-info-box_4af8f9-a0 .kt-infobox-textcontent h4.kt-blocks-info-box-title{font-size:1.2rem;padding-top:0px;padding-right:15px;padding-bottom:0px;padding-left:15px;margin-top:10px;margin-right:0px;margin-bottom:10px;margin-left:0px;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-learnmore{color:var(--global-palette9, #ffffff);background:var(--global-palette2, #2B6CB0);border-color:#555555;border-radius:20px;font-size:13px;font-weight:bold;border-width:0px 0px 0px 0px;padding-top:8px;padding-right:16px;padding-bottom:8px;padding-left:16px;margin-top:0px;margin-right:0px;margin-bottom:20px;margin-left:0px;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-learnmore,#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap .kt-blocks-info-box-learnmore:focus{color:#ffffff;background:var(--global-palette1, #3182CE);border-color:#444444;}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}@media all and (max-width: 1024px){#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 1024px){#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 767px){#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_4af8f9-a0 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}<\/style>\n<div id=\"kt-info-box_4af8f9-a0\" class=\"wp-block-kadence-infobox\"><a class=\"kt-blocks-info-box-link-wrap info-box-link kt-blocks-info-box-media-align-top kt-info-halign-center\" href=\"https:\/\/rarediseasemalaysia.com\/challenges-and-recommendations\/lack-of-access-to-medications\/\"><div class=\"kt-blocks-info-box-media-container\"><div class=\"kt-blocks-info-box-media kt-info-media-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic-container\"><div class=\"kadence-info-box-image-intrisic kt-info-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/k1pgqk2copm-768x512.jpg\" alt=\"\" width=\"768\" height=\"512\" class=\"kt-info-box-image wp-image-202\" srcset=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/k1pgqk2copm-768x512.jpg 768w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/k1pgqk2copm-150x100.jpg 150w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/k1pgqk2copm-350x233.jpg 350w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/k1pgqk2copm.jpg 1600w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/div><\/div><\/div><\/div><\/div><div class=\"kt-infobox-textcontent\"><h4 class=\"kt-blocks-info-box-title\">Kekurangan Akses Ke Ubat-Ubatan<\/h4><p class=\"kt-blocks-info-box-text\"><\/p><div class=\"kt-blocks-info-box-learnmore-wrap\"><span class=\"kt-blocks-info-box-learnmore\">Ketahui Lebih Lanjut<\/span><\/div><\/div><\/a><\/div>\n<\/div><\/div>\n\n\n<style>.kadence-column_489a35-be > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_489a35-be > .kt-inside-inner-col,.kadence-column_489a35-be > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_489a35-be > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_489a35-be > .kt-inside-inner-col{flex-direction:column;}.kadence-column_489a35-be > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_489a35-be > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_489a35-be{position:relative;}@media all and (max-width: 1024px){.kadence-column_489a35-be > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_489a35-be > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-5 kadence-column_489a35-be\"><div class=\"kt-inside-inner-col\"><style>.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_59db64-00{max-width:100vw;}.wp-block-kadence-column.kb-section-dir-horizontal > .kt-inside-inner-col > #kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap{max-width:unset;}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);max-width:100vw;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-top:2%;margin-right:2%;margin-bottom:2%;margin-left:2%;}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover{border-color:var(--global-palette9, #ffffff);background:var(--global-palette9, #ffffff);}#kt-info-box_59db64-00.wp-block-kadence-infobox{max-width:100%;}#kt-info-box_59db64-00 .kadence-info-box-image-inner-intrisic-container .kadence-info-box-image-intrisic{padding-bottom:66.7969%;width:768px;height:0px;max-width:100%;}#kt-info-box_59db64-00 .kadence-info-box-icon-container .kt-info-svg-icon, #kt-info-box_59db64-00 .kt-info-svg-icon-flip, #kt-info-box_59db64-00 .kt-blocks-info-box-number{font-size:50px;}#kt-info-box_59db64-00 .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;}#kt-info-box_59db64-00 .kt-blocks-info-box-media-container{margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-media{color:#444444;background:transparent;border-color:#444444;}#kt-info-box_59db64-00 .kt-infobox-textcontent h4.kt-blocks-info-box-title{font-size:1.2rem;padding-top:0px;padding-right:15px;padding-bottom:0px;padding-left:15px;margin-top:10px;margin-right:0px;margin-bottom:10px;margin-left:0px;}#kt-info-box_59db64-00 .kt-blocks-info-box-learnmore{color:var(--global-palette9, #ffffff);background:var(--global-palette2, #2B6CB0);border-color:#555555;border-radius:20px;font-size:13px;font-weight:bold;border-width:0px 0px 0px 0px;padding-top:8px;padding-right:16px;padding-bottom:8px;padding-left:16px;margin-top:0px;margin-right:0px;margin-bottom:20px;margin-left:0px;}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover .kt-blocks-info-box-learnmore,#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap .kt-blocks-info-box-learnmore:focus{color:#ffffff;background:var(--global-palette1, #3182CE);border-color:#444444;}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}@media all and (max-width: 1024px){#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 1024px){#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}@media all and (max-width: 767px){#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}#kt-info-box_59db64-00 .kt-blocks-info-box-link-wrap:hover{box-shadow:0px 15px 30px -10px rgba(34, 35, 66, 0.3);}}<\/style>\n<div id=\"kt-info-box_59db64-00\" class=\"wp-block-kadence-infobox\"><a class=\"kt-blocks-info-box-link-wrap info-box-link kt-blocks-info-box-media-align-top kt-info-halign-center\" href=\"https:\/\/rarediseasemalaysia.com\/challenges-and-recommendations\/recommendations\/\"><div class=\"kt-blocks-info-box-media-container\"><div class=\"kt-blocks-info-box-media kt-info-media-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic-container\"><div class=\"kadence-info-box-image-intrisic kt-info-animate-none\"><div class=\"kadence-info-box-image-inner-intrisic\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/mqpmdf1mere-768x513.jpg\" alt=\"\" width=\"768\" height=\"513\" class=\"kt-info-box-image wp-image-1092\" srcset=\"https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/mqpmdf1mere-768x513.jpg 768w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/mqpmdf1mere-150x100.jpg 150w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/mqpmdf1mere-350x234.jpg 350w, https:\/\/rarediseasemalaysia.com\/wp-content\/uploads\/mqpmdf1mere.jpg 1600w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/div><\/div><\/div><\/div><\/div><div class=\"kt-infobox-textcontent\"><h4 class=\"kt-blocks-info-box-title\">Pengesyoran<\/h4><p class=\"kt-blocks-info-box-text\"><\/p><div class=\"kt-blocks-info-box-learnmore-wrap\"><span class=\"kt-blocks-info-box-learnmore\">Ketahui Lebih Lanjut<\/span><\/div><\/div><\/a><\/div>\n<\/div><\/div>\n<\/div><\/div><\/div>\n<\/div><\/div>\n<\/div><\/div><\/div>\n<style>#kt-layout-id_0a59fa-12 > .kt-row-column-wrap{align-content:start;}:where(#kt-layout-id_0a59fa-12 > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:start;}#kt-layout-id_0a59fa-12 > .kt-row-column-wrap{column-gap:80px;row-gap:var(--global-kb-gap-md, 2rem);padding-top:var( --global-kb-row-default-top, 25px );padding-bottom:var( --global-kb-row-default-bottom, 25px );padding-top:8rem;padding-bottom:8rem;grid-template-columns:repeat(2, minmax(0, 1fr));}#kt-layout-id_0a59fa-12 > .kt-row-layout-overlay{opacity:0.30;}@media all and (max-width: 1024px){#kt-layout-id_0a59fa-12 > .kt-row-column-wrap{grid-template-columns:repeat(2, minmax(0, 1fr));}}@media all and (max-width: 767px){#kt-layout-id_0a59fa-12 > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}<\/style>\n<div class=\"wp-block-kadence-rowlayout alignnone\"><div id=\"kt-layout-id_0a59fa-12\" class=\"kt-row-layout-inner kt-layout-id_0a59fa-12\"><div class=\"kt-row-column-wrap kt-has-2-columns kt-gutter-widest kt-v-gutter-default kt-row-valign-top kt-row-layout-equal kt-tab-layout-inherit kt-m-colapse-left-to-right kt-mobile-layout-row\"><style>.kadence-column_abd065-14 > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_abd065-14 > .kt-inside-inner-col,.kadence-column_abd065-14 > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_abd065-14 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_abd065-14 > .kt-inside-inner-col{flex-direction:column;}.kadence-column_abd065-14 > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_abd065-14 > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_abd065-14{position:relative;}@media all and (max-width: 1024px){.kadence-column_abd065-14 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_abd065-14 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-1 kadence-column_abd065-14\"><div class=\"kt-inside-inner-col\">\n<h4 class=\"wp-block-heading\" style=\"font-size:18px\">Prof Thong Meow Keong<\/h4>\n\n\n\n<p>adalah Profesor Pediatrik dan Pakar Perunding Klinikal di Pusat Perubatan Universiti Malaya. Beliau adalah seorang sarjana Fulbright dan ahli genetik klinikal yang disahkan oleh Lembaga Australasian. Beliau telah menubuhkan Unit Klinik Genetik dan Unit Genetik &amp; Metabolisme di Jabatan Pediatrik, Fakulti Perubatan, Universiti Malaya pada tahun 1995. Beliau mempunyai banyak penerbitan mengenai penyakit-penyakit jarang jumpa dan diwarisi di Malaysia, dengan hampir 90 kertas jurnal yang dikaji semula, menulis 6 buku dan monograf, dan 10 bab buku termasuk satu dalam Monograf Oxford dalam Genetik Perubatan. Beliau juga telah membuat pembentangan di lebih daripada 150 prosiding persidangan. Beliau telah bekerjasama dengan institusi global dan memenangi pelbagai anugerah penyelidikan. Beliau bekerja dengan Kementerian Kesihatan Malaysia dalam membangunkan modul kaunseling genetik untuk talasemia dan terlibat dalam pelbagai jawatankuasa pendidikan, teknikal, dan garis panduan mengenai penyakit yang diwarisi \/ penyakit jarang jumpa. Beliau juga telah dijemput oleh Pertubuhan Kesihatan Sedunia (WHO) untuk membantu menyediakan monograf mengenai \u201cPengurusan Kecacatan Kelahiran dan Gangguan Hemoglobin.\u201d Beliau adalah Presiden Kolej Pediatrik, Akademi Perubatan Malaysia; Pengerusi Genetik Klinikal subkhusus, Daftar Pakar Kebangsaan, Naib Presiden Persatuan Genetik Perubatan Malaysia dan Penasihat kepada Persatuan Penyakit Jarang Jumpa Malaysia (MRDS). Beliau adalah Ketua Jabatan Pediatrik, Universiti Malaya dari 2009-2011 dan bekas Presiden Persatuan Genetik Manusia Asia Pasifik (2012-2015).<\/p>\n<\/div><\/div>\n\n\n<style>.kadence-column_6615c2-7f > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_6615c2-7f > .kt-inside-inner-col,.kadence-column_6615c2-7f > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_6615c2-7f > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_6615c2-7f > .kt-inside-inner-col{flex-direction:column;}.kadence-column_6615c2-7f > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_6615c2-7f > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_6615c2-7f{position:relative;}@media all and (max-width: 1024px){.kadence-column_6615c2-7f > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_6615c2-7f > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-2 kadence-column_6615c2-7f\"><div class=\"kt-inside-inner-col\">\n<h4 class=\"wp-block-heading\" style=\"font-size:18px\">Dr. Azlina Ahmad Annuar<\/h4>\n\n\n\n<p>(BSc Neuroscience &#8211; University College London; PhD Neurogenetics -Imperial College London) adalah pensyarah kanan di Jabatan Sains Bioperubatan, Fakulti Perubatan, Universiti Malaya. Minat beliau adalah dalam penyelidikan bidang neurosains dan genetik penyakit neurologi; di mana beberapa daripadanya termasuk dalam kategori penyakit jarang jumpa. Beliau juga menjalankan beberapa aktiviti komuniti seperti Minggu Kesedaran Otak setiap tahun, dan kempen Jeans for Genes Malaysia yang bekerja rapat dengan kumpulan sokongan pesakit untuk membantu meningkatkan kesedaran mengenai gangguan genetik.<\/p>\n<\/div><\/div>\n<\/div><\/div><\/div>\n<style>#kt-layout-id_83c82e-9a > .kt-row-column-wrap{align-content:start;}:where(#kt-layout-id_83c82e-9a > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:start;}#kt-layout-id_83c82e-9a > .kt-row-column-wrap{column-gap:80px;row-gap:var(--global-kb-gap-md, 2rem);padding-top:var( --global-kb-row-default-top, 25px );padding-bottom:var( --global-kb-row-default-bottom, 25px );padding-top:8rem;padding-bottom:8rem;grid-template-columns:minmax(0, 1fr);}#kt-layout-id_83c82e-9a > .kt-row-layout-overlay{opacity:0.30;}#kt-layout-id_83c82e-9a ,#kt-layout-id_83c82e-9a h1,#kt-layout-id_83c82e-9a h2,#kt-layout-id_83c82e-9a h3,#kt-layout-id_83c82e-9a h4,#kt-layout-id_83c82e-9a h5,#kt-layout-id_83c82e-9a h6{color:var(--global-palette9, #ffffff);}#kt-layout-id_83c82e-9a a{color:var(--global-palette2, #2B6CB0);}#kt-layout-id_83c82e-9a a:hover{color:var(--global-palette9, #ffffff);}@media all and (max-width: 1024px){#kt-layout-id_83c82e-9a > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}@media all and (max-width: 767px){#kt-layout-id_83c82e-9a > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}<\/style>\n<div class=\"wp-block-kadence-rowlayout alignfull\"><div id=\"kt-layout-id_83c82e-9a\" class=\"kt-row-layout-inner kt-row-has-bg kt-layout-id_83c82e-9a has-theme-palette-3-background-color\"><div class=\"kt-row-column-wrap kt-has-1-columns kt-gutter-widest kt-v-gutter-default kt-row-valign-top kt-row-layout-equal kt-tab-layout-inherit kt-m-colapse-left-to-right kt-mobile-layout-row\"><style>.kadence-column_685078-2e > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_685078-2e > .kt-inside-inner-col,.kadence-column_685078-2e > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_685078-2e > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_685078-2e > .kt-inside-inner-col{flex-direction:column;}.kadence-column_685078-2e > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_685078-2e > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_685078-2e{position:relative;}@media all and (max-width: 1024px){.kadence-column_685078-2e > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_685078-2e > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-1 kadence-column_685078-2e\"><div class=\"kt-inside-inner-col\">\n<h4 class=\"has-text-align-center has-theme-palette-2-color has-text-color wp-block-heading\">Rujukan<\/h4>\n\n\n<style>#kt-layout-id_e13135-0e > .kt-row-column-wrap{align-content:start;}:where(#kt-layout-id_e13135-0e > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:start;}#kt-layout-id_e13135-0e > .kt-row-column-wrap{column-gap:80px;row-gap:var(--global-kb-gap-md, 2rem);max-width:var( --global-content-width, 1290px );padding-left:var(--global-content-edge-padding);padding-right:var(--global-content-edge-padding);padding-top:var( --global-kb-row-default-top, 25px );padding-bottom:var( --global-kb-row-default-bottom, 25px );padding-top:var(--global-kb-spacing-sm, 1.5rem);padding-bottom:var(--global-kb-spacing-sm, 1.5rem);grid-template-columns:repeat(2, minmax(0, 1fr));}#kt-layout-id_e13135-0e > .kt-row-layout-overlay{opacity:0.30;}#kt-layout-id_e13135-0e ,#kt-layout-id_e13135-0e h1,#kt-layout-id_e13135-0e h2,#kt-layout-id_e13135-0e h3,#kt-layout-id_e13135-0e h4,#kt-layout-id_e13135-0e h5,#kt-layout-id_e13135-0e h6{color:var(--global-palette9, #ffffff);}#kt-layout-id_e13135-0e a{color:var(--global-palette2, #2B6CB0);}#kt-layout-id_e13135-0e a:hover{color:var(--global-palette9, #ffffff);}@media all and (max-width: 1024px){#kt-layout-id_e13135-0e > .kt-row-column-wrap{grid-template-columns:repeat(2, minmax(0, 1fr));}}@media all and (max-width: 767px){#kt-layout-id_e13135-0e > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}}<\/style>\n<div class=\"wp-block-kadence-rowlayout alignnone\"><div id=\"kt-layout-id_e13135-0e\" class=\"kt-row-layout-inner kt-layout-id_e13135-0e\"><div class=\"kt-row-column-wrap kt-has-2-columns kt-gutter-widest kt-v-gutter-default kt-row-valign-top kt-row-layout-equal kt-tab-layout-inherit kt-m-colapse-left-to-right kt-mobile-layout-row kb-theme-content-width\"><style>.kadence-column_5b2a4c-3c > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_5b2a4c-3c > .kt-inside-inner-col,.kadence-column_5b2a4c-3c > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_5b2a4c-3c > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_5b2a4c-3c > .kt-inside-inner-col{flex-direction:column;}.kadence-column_5b2a4c-3c > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_5b2a4c-3c > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_5b2a4c-3c{position:relative;}@media all and (max-width: 1024px){.kadence-column_5b2a4c-3c > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_5b2a4c-3c > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-1 kadence-column_5b2a4c-3c\"><div class=\"kt-inside-inner-col\">\n<p class=\"has-theme-palette-9-color has-text-color has-small-font-size\">Cremers, Serge, and Jeffrey K. Aronson. 2017. \u201cDrugs for Rare Disorders.\u201d British Journal of Clinical Pharmacology 83, no. 8.<a style=\"color: #ffffff;\" rel=\"noopener\" href=\"https:\/\/doi.org\/10.1111\/bcp\" target=\"_blank\"> <\/a><a href=\"https:\/\/doi.org\/10.1111\/bcp.13331\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/doi.org\/10.1111\/bcp.13331<\/a><\/p>\n\n\n\n<p class=\"has-small-font-size\">EURORDIS. 2009. \u201cWhat is a Rare Disease?\u201d Accessed April 8, 2018. <a href=\"http:\/\/www.eurordis.org\/content\/what-ra-re-disease\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.eurordis.org\/content\/what-ra-re-disease<\/a>. Accessed April 8th 2018.<\/p>\n\n\n\n<p class=\"has-small-font-size\">Gammie,Todd, ChristineY. Lu, and Zaheer Ud-Din Babar.\u201cAccess to Orphan Drugs:A Comprehensive Re- view of Legislations, Regulations and Policies in 35 Countries.\u201d PLoS ONE 10. <a href=\"https:\/\/doi.org\/10.1371\/journa.pone.0140002\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/journals.plos.org\/plosone\/article?id=10.1371\/journal.pone.0140002<\/a><\/p>\n\n\n\n<p class=\"has-small-font-size\">Hunter, Nina L., Gayatri R. Rao and Rachel E. Sherman. 2017. \u201cFlexibility in the FDA Approach to Orphan Drug Development.\u201d Nat. Rev. Drug Discov. 16, 737-738.  <a href=\"https:\/\/www.nature.com\/articles\/nrd.2017.151\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.nature.com\/articles\/nrd.2017.151<\/a><\/p>\n\n\n\n<p class=\"has-small-font-size\">Malaysia Rare Disorders Society, and Malaysian Lysosomal Diseases Association and Malaysian Metabolic Soci- ety.\u201cConference Report on Developing Strategies for a National Rare Disease Plan.\u201d Second Malaysia Confer- ence on Rare Disorders. October 25-26, 2013.<\/p>\n\n\n\n<p class=\"has-small-font-size\">Kementerian Kesihatan Malaysia. 2016.\u201cNational Strategic Plan for Non-Communicable Disease (NSP-NCD) 2016- 2015.\u201d <a href=\"https:\/\/www.moh.gov.my\/moh\/resources\/Penerbitan\/Rujukan\/NCD\/National%20Strategic%20Plan\/FINAL_NSPNCD.pdf2bbeb28xyUTmbiTPYdCtdE\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.moh.gov.my\/moh\/resources\/<\/a><\/p>\n<\/div><\/div>\n\n\n<style>.kadence-column_993908-dd > .kt-inside-inner-col{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;}.kadence-column_993908-dd > .kt-inside-inner-col,.kadence-column_993908-dd > .kt-inside-inner-col:before{border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;}.kadence-column_993908-dd > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column_993908-dd > .kt-inside-inner-col{flex-direction:column;}.kadence-column_993908-dd > .kt-inside-inner-col > .aligncenter{width:100%;}.kadence-column_993908-dd > .kt-inside-inner-col:before{opacity:0.3;}.kadence-column_993908-dd{position:relative;}@media all and (max-width: 1024px){.kadence-column_993908-dd > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}@media all and (max-width: 767px){.kadence-column_993908-dd > .kt-inside-inner-col{flex-direction:column;justify-content:center;}}<\/style>\n<div class=\"wp-block-kadence-column inner-column-2 kadence-column_993908-dd\"><div class=\"kt-inside-inner-col\">\n<p class=\"has-small-font-size\">CremeMinistry of Health Malaysia. 2017.\u201cHealthTechnology Assessment: Enzyme ReplacementTherapy for Metabolic Diseases.\u201d <a href=\"http:\/\/www.moh.gov.my\/update2017\/1466.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.moh.gov.my\/update2017\/1466.pdf<\/a><\/p>\n\n\n\n<p class=\"has-small-font-size\">NSTTeam. 2017.\u201cRM27 Billion to Further Enhance Quality of Health Services.\u201dThe New StraitsTimes, 27th Oct 2017. <a href=\"https:\/\/www.nst.com.my\/news\/nation\/2017\/10\/295840\/rm27-billion-further-enhance-quali-%20ty-health-services\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.nst.com.my\/news\/nation\/2017\/10\/295840\/rm27-billion-further-enhance-quali- ty-health-services<\/a>.<\/p>\n\n\n\n<p class=\"has-small-font-size\">Pharmaceutical Research and Manufacturers of America (PhRMA). 2015. \u201c2005 \u2013 2015: A Decade of Innovation in Rare Diseases.\u201d <a href=\"https:\/\/www.phrma.org\/report\/2005-2015-a-decade-of-innovation-in-rare-diseases\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.phrma.org\/report\/2005-2015-a-decade-of-innovation-in-rare-diseases<\/a><\/p>\n\n\n\n<p class=\"has-small-font-size\">Right Diagnosis from Healthgrades. 2015.\u201cStatistics by Country for Rare Diseases.\u201dAccessed 23 September 2018. <a href=\"http:\/\/www.rightdiagnosis.com\/r\/rare_diseases\/stats-country.htm\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.rightdiagnosis.com\/r\/rare_diseases\/stats-country.htm<\/a>.<\/p>\n\n\n\n<p class=\"has-small-font-size\">Shafie,Arsul Akmal,Azuwana Supian, andThong Meow Keong.\u201cTaking Stock of Rare Disease.\u201dThe Star, March 1, 2017. <a href=\"https:\/\/www.thestar.com.my\/opinion\/letters\/2018\/03\/01\/taking-stock-of-rare-disease\/\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.thestar.com.my\/opinion\/letters\/2018\/03\/01\/taking-stock-of-rare-disease\/<\/a><\/p>\n<\/div><\/div>\n<\/div><\/div><\/div>\n<\/div><\/div>\n<\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>\u201cChallenges faced by Malaysia Rare Disease communities and Recommendations\u201d ditulis olehProf Thong Meow Keong dan Dr. Azlina Ahmad-Annuar. Kandungan ini diterbitkan sebagaiBrief IDEAS No 10 \u2013National Policy on Rare Diseases Living with Dignity: In Search of Solutions for Rare Diseases. Prof Thong Meow Keong adalah Profesor Pediatrik dan Pakar Perunding Klinikal di Pusat Perubatan Universiti&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"Lebih kurang 30% pesakit penyakit jarang jumpa mati sebelum mencapai usia 5 tahun. Kira-kira 9% atau 45 juta orang di Asia Tenggara menghidap penyakit anak yatim","_seopress_robots_index":"","_kad_blocks_custom_css":"","_kad_blocks_head_custom_js":"","_kad_blocks_body_custom_js":"","_kad_blocks_footer_custom_js":"","_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"_kad_post_classname":"","footnotes":""},"class_list":["post-1608","page","type-page","status-publish","hentry"],"taxonomy_info":[],"featured_image_src_large":false,"author_info":{"display_name":"Rare","author_link":"https:\/\/rarediseasemalaysia.com\/ms\/author\/julian-rare\/"},"comment_info":0,"_links":{"self":[{"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/pages\/1608","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/comments?post=1608"}],"version-history":[{"count":0,"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/pages\/1608\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseasemalaysia.com\/ms\/wp-json\/wp\/v2\/media?parent=1608"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}