本页专为向我们在马来西亚的罕见疾病战士和在世英雄致敬。
我们的战士可能已离我们而去，但他们为大家留下了遗产和宝贵的生命教训。
我们的在世英雄提醒大家，无论生命多脆弱，我们内心的积极和奋斗精神驱使我们继续前行。
英雄
Nurul Afrina Balqis
Morquio Syndrome Type IV A
Mathana
Morquio Syndrome Type IV
Muhammad Hazim Imran
Hunter Syndrome MPS Type III
Chong Jia Jian
Muccopolysaccharidosis Type 1
Branden
Spinal Muscular Atrophy
SMA patients
Spinal Muscular
Pesakit ichtyosis
Ichtyosis Disease
战士
Caitlyn Ooi Xuen En
(22nd September 2016 – 20th September 2018)
Infantile Pompe
Nor Aryan Mikail
31st January 2017 – 27th June 2018
Infantile Pompe
Nurul Nasrin
6th January 2007 – 4th September 2018
Morquio Syndrome
Darmash
MPS Type II disease (Hunter Syndrome)