联系

Siva SK

(Father of Swathi – Infantile Pompe Warrior) & Rare Disease Advocate

6012-467 RARE (7273)
6012-368 4548
[email protected]
info@localhost

Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.

联系

Menu

CONNECT

Inborn Errors of Metabolism – A Survival Guide

Rare disease in Malaysia: Challenges and solutions

Care of people with rare diseases should not be compromised in the time of Covid-19

Caution for rare disease patients

Parents are pillars of strength for these rare disease patients