Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.
Recent Post
Spinocerebellar Ataxia
March 8, 2020
The Pompe Family
June 4, 2019
Mawaddah hidap penyakit jarang jumpa
June 4, 2019
William Syndrome: All Q&A Answered (Malaysia)
June 4, 2019
Tulang rapuh bukan halangan
June 4, 2019
Penghidup wajah
June 4, 2019
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