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rare disease malaysia
  • About
  • Challenges & RecommendationsExpand
    • Lack of Recognition and Inclusiveness
    • Lack of Awareness and Comprehensive Healthcare Provisions
    • Lack of Access to Medications
    • Lack of Protection of the Rights and Dignity of Individuals with Rare Diseases
    • Recommendations
  • RD Champions
  • Tribute
  • Blog & Media
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rare disease malaysia

Contact

Siva SK

(Father of Swathi – Infantile Pompe Warrior) & Rare Disease Advocate

  • 6012-467 RARE (7273)
  • 6012-368 4548
  • [email protected]
  • info@localhost
rare disease malaysia

Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.

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Inborn Errors of Metabolism – A Survival Guide

July 16, 2024
rarediseasemalaysia

Rare disease in Malaysia: Challenges and solutions

September 5, 2020
rarediseasemalaysia

Care of people with rare diseases should not be compromised in the time of Covid-19

September 5, 2020
rarediseasemalaysia

Caution for rare disease patients

September 5, 2020
Aisha (in wheelchair) is more attached to her father Azhar (left), who showers her with affection

Parents are pillars of strength for these rare disease patients

September 5, 2020

© 2024 Rare Disease Malaysia | All Right’s Reserved | CSR by Ulement

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  • About
  • Challenges & Recommendations
    • Lack of Recognition and Inclusiveness
    • Lack of Awareness and Comprehensive Healthcare Provisions
    • Lack of Access to Medications
    • Lack of Protection of the Rights and Dignity of Individuals with Rare Diseases
    • Recommendations
  • RD Champions
  • Tribute
  • Blog & Media
  • Contact