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HOW CAN I ACCESS GENETIC TESTING FOR MY CHILD?

To access genetic testing you …

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Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.

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马来西亚罕见病
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Diagnosis and Management of Genetic Disorders in Malaysia – A Practical Guide

2025年10月28日

Inborn Errors of Metabolism – A Survival Guide

2024年7月16日

rarediseasemalaysia

Rare disease in Malaysia: Challenges and solutions

2020年9月5日

rarediseasemalaysia

Care of people with rare diseases should not be compromised in the time of Covid-19

2020年9月5日

rarediseasemalaysia

Caution for rare disease patients

2020年9月5日

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简介
挑战与建议
罕见疾病患者的维护者
致敬
联系