Abstract Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy…
The Covid-19 pandemic is a challenging time for all. Rare Diseases Alliance Foundation Malaysia (RDAFM) fully supports the frontline health professionals in the fight to contain this virus and to…
PEOPLE living with rare diseases face many difficulties in getting the diagnosis and care they need. These difficulties are now exacerbated by the Covid-19 pandemic. Many people with rare diseases…
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