Empowering our Nation for the Betterment of
Malaysia Rare Disease Children’s Future
Rare Diseases Malaysia
Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.
About 30% of rare disease patients die before the age of five. About 9% or 45 million people in South East Asia are afflicted by orphan diseases (Right Diagnosis, 2015)
The Challenges and Recommendations
Challenges faced by Malaysia Rare Disease communities and Recommendations are authored by
Prof Thong Meow Keong and Dr. Azlina Ahmad-Annuar.
This content published as
Brief IDEAS No 10 –National Policy on Rare Diseases Living with Dignity: In Search of Solutions for Rare Diseases.
