Blog & Media
Media
September 5, 2020
Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.
Recent Post
Rare disease in Malaysia: Challenges and solutions
September 5, 2020
Caution for rare disease patients
September 5, 2020
Parents are pillars of strength for these rare disease patients
September 5, 2020
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
September 5, 2020
Sharing rare disease data across borders
September 5, 2020
© 2021 Rare Disease Malaysia | All Right’s Reserved | Designed and Managed by Ulement