Taking stock of rare disease
Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their…
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Living Life in The Face of Muscular Atrophy
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
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Scaling Mount Kinabalu to raise awareness about rare diseases
A father’s love for his ill baby has pushed him to get out of his comfort zone as he strives to create awareness on rare diseases in Malaysia. Sivasangaran Kumaran,…
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