He just can’t play like the rest
While other children fully and freely enjoy their childhood, seven-year-old Muhammad Hazril Mikhail Hizar is unable to due to a rare skin disease. The boy suffers from epidermolysis bullosa or…
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Spinal muscular atrophy – making hope real for the families
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…
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Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
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