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TO UNDERSTAND her subjects, full-time artist Chiang Sook Siang visited the clinic where they were receiving their doses of enzyme replacement therapy every day for a month. That is why…
Rare Disease Week – Reflections with A Parent of Rare Disease Child
https://youtu.be/nKXX4I6rL5k
He just can’t play like the rest
While other children fully and freely enjoy their childhood, seven-year-old Muhammad Hazril Mikhail Hizar is unable to due to a rare skin disease. The boy suffers from epidermolysis bullosa or…
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