Similar Posts
Living Life in The Face of Muscular Atrophy
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
Health Ministry urged to approve drug to help patients with spinal muscular atrophy
The Health Ministry should approve a drug named Spinraza that can help people with spinal muscular atrophy (SMA), said WeCare Journey co-founder Yap Sook Yee. “On December 23, 2016, the…
RM50 juta tak cukup
KERAJAAN Kelantan menyifatkan peruntukan RM50 juta kepada sekolah tahfiz yang diumumkan menerusi Belanjawan 2019, masih tidak mencukupi. Timbalan Menteri Besar, Datuk Mohd Amar Nik Abdullah berkata, walaupun angka berkenaan dilihat…
This Mother Is Fighting For More Funding To Treat Rare Diseases In Budget 2019
The Pakatan Harapan government is now less than a month away from tabling Budget 2019, its maiden Supply Bill The bill will be tabled on 2 November, and debates on…
The Rare Diseases Day Symposium: Towards a National Policy
On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to…
He just can’t play like the rest
While other children fully and freely enjoy their childhood, seven-year-old Muhammad Hazril Mikhail Hizar is unable to due to a rare skin disease. The boy suffers from epidermolysis bullosa or…
