Perjuangan Adnin, Aqilah

Tiada siapa menyangka di sebalik wajah ceria dan senyum manis dua beradik ini mereka sebenarnya menyembunyikan penyakit kronik yang boleh membawa maut sejak sepuluh tahun lalu.

Adnin, 18, dan Aqilah Baharudin, 16, disahkan menghidap penyakit penyimpanan lisosomal (LSD) Mucopolysaccharidosis jenis IV A (MPS IV A) menyebabkan mereka mengalami kesukaran untuk bergerak kerana pertumbuhan terbantut.

Namun, Adnin dan Aqilah terus berjuang walaupun masih belum mendapat rawatan penyakit itu iaitu Terapi Penggantian Enzim (ERT) yang dianggarkan kosnya dianggarkan antara RM500,000 sehingga RM1 juta setahun dan boleh mengancam nyawa sekiranya tidak segera dirawat.

Read more at Harian Metro

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