NEVER let a medical condition stop you from living life to the fullest.
This is the message Sofia Lovi Ramasamy, Nik Norziehana Che Isa, and Nor Athira Sujino want to send out as finalists for Miss Amazing Malaysia 2019, a beauty pageant for physically challenged women.
Nor Athira, a commis chef, almost did not make it to the pageant as organisers felt that as a lupus patient, she is “normal”.
Read more at The Star
In conjunction with this year’s World Rare Disease Day at the end of this month, the Malaysian Rare Disorders Society (MRDS) is collaborating with PuakPayong to organise a “Mingle and…
To access genetic testing you must contact your GP or specialist clinician who will arrange a referral for you to an NHS Regional Genetics Service. Here we explain what will…
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
工程师盼唤醒关注溶酶体病症．单骑1千公里请愿 Read more at Sin Chew
KUANTAN: Masih segar di ingatan Mohd Nazrul Mohamed Saat, 34, dan isterinya Zuraida Baharuddin, 36, pemergian anak sulung mereka Nurul Fatin Nadilla 12 tahun lalu akibat penyakit genetik. Kini, pasangan…
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…