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Abstract Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy…
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IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
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Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…