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Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
Rare Disease Week – Reflections with A Parent of Rare Disease Child
https://youtu.be/nKXX4I6rL5k
RM50 juta untuk rawatan penyakit jarang jumpa
Kerajaan menyediakan peruntukan RM50 juta bagi rawatan penyakit jarang jumpa, rawatan virus Hepatitis C, program tangani masalah pertumbuhan bantut pada kanak-kanak, rawatan haemodialisis dan Penjagaan Kesihatan Utama Dipertingkatkan (EPH). Menteri…
Inclusive education: Disconnect between policy and reality
HIS is an open letter to the minister and Ministry of Education. Inclusive education of children with disabilities is accepted internationally as a standard and right for all children. While…
Spinal muscular atrophy – making hope real for the families
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…
Tak sanggup kehilangan Farish
KUANTAN: Masih segar di ingatan Mohd Nazrul Mohamed Saat, 34, dan isterinya Zuraida Baharuddin, 36, pemergian anak sulung mereka Nurul Fatin Nadilla 12 tahun lalu akibat penyakit genetik. Kini, pasangan…