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Policy IDEAS No 58 – Improving Access to Orphan Drugs in Malaysia
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…
Competing to prove a point
NEVER let a medical condition stop you from living life to the fullest. This is the message Sofia Lovi Ramasamy, Nik Norziehana Che Isa, and Nor Athira Sujino want to…
Need for rare disease policy
PETALING JAYA: Once a week since December 2017, Sivasangaran Kumaran will strap his 21-month-old daughter Swathi Nisha Nair in the car seat and make the long drive from Seremban to…
Insurance coverage for rare diseases
THE Malaysian Alliance of Rare Diseases Foundation takes note of the government’s effort to provide better healthcare coverage for the B40 group through a social health insurance scheme. Although the…
You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
Penghidup wajah
Petaling Jaya: “Mungkin hanya segelintir orang kurang upaya (OKU) yang bekerja sebagai jurusolek di sini (Malaysia) namun kerjaya ini tidak asing lagi bagi masyarakat di luar negara. “Malah, saya percaya…