Similar Posts
Rare disease unable to stop talented painter
Having a rare genetic disease does not stop Nur Fariza Abu Hassan from creating beautiful, almost life-like art that has not gone unnoticed on social media. Her pictures of landscapes,…
The Pompe Family
Last Thursday, April 4th 2019 I received a shocking news that my 43 days old nephew is having a rare disease. He has undergone many operations due to birth complications…
Spinal muscular atrophy – making hope real for the families
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…
Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
Differently-abled banker wears Miss Amazing crown
SOFIA Lovi Ramasamy proved that being differently-abled is no barrier when she was crowned the very first Miss Amazing Malaysia (MAM). Winning the title at the inaugural event, held at…