Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their impact on the lives of patients.
Read more at The Star
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…
THE Malaysian Alliance of Rare Diseases Foundation takes note of the government’s effort to provide better healthcare coverage for the B40 group through a social health insurance scheme. Although the…
In conjunction with this year’s World Rare Disease Day at the end of this month, the Malaysian Rare Disorders Society (MRDS) is collaborating with PuakPayong to organise a “Mingle and…
SOFIA Lovi Ramasamy proved that being differently-abled is no barrier when she was crowned the very first Miss Amazing Malaysia (MAM). Winning the title at the inaugural event, held at…
The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease has released a roadmap detailing three tracks focused on patient and family empowerment, technology, and genetic consultation. All of which…