Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their impact on the lives of patients.
Read more at The Star
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…
MAS AHMAH JONID begitu teruja bercerita mengenai anak perempuannya, Mawaddah A. Khalil. Begitulah naluri seorang ibu yang sentiasa bangga dengan cahaya matanya di sebalik berdepan dengan pelbagai kesukaran hidup. Anak…
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Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
Azhar Talib and Norliza Mohd Din were delighted when their fourth child was born in 2000. Nur Lydia Afrina was a picture of contentment as she slept most of the…
Last Thursday, April 4th 2019 I received a shocking news that my 43 days old nephew is having a rare disease. He has undergone many operations due to birth complications…