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Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
Inclusive education: Disconnect between policy and reality
HIS is an open letter to the minister and Ministry of Education. Inclusive education of children with disabilities is accepted internationally as a standard and right for all children. While…
You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
Caution for rare disease patients
PEOPLE living with rare diseases face many difficulties in getting the diagnosis and care they need. These difficulties are now exacerbated by the Covid-19 pandemic. Many people with rare diseases…
Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
Rare disease unable to stop talented painter
Having a rare genetic disease does not stop Nur Fariza Abu Hassan from creating beautiful, almost life-like art that has not gone unnoticed on social media. Her pictures of landscapes,…