William Syndrome: All Q&A Answered (Malaysia)

Many asked about April. The elder she get, her slow development is more prominent to the public. William Syndrome is still a stranger to many. Here I am answering some of the curiosity.

Flashbacks aren’t easy – its like overcoming self emotions. Penning this down is fine with me but indeed it need more strength to word it out for the recent interview with Jerry Song for MACST( Make A Child Smile Today) in collaboration with MRDS (Malaysia Rare Disability Society.

FYI – MACST is a university students-initiated pediatric society which aims to contribute to the hospital and the younger generation by organizing various charity events and awareness projects.

Read more at malaysianparenting

Similar Posts

  • Ideas to help rare disease community

    In conjunction with this year’s World Rare Disease Day at the end of this month, the Malaysian Rare Disorders Society (MRDS) is collaborating with PuakPayong to organise a “Mingle and…

  • RM50 juta tak cukup

    KERAJAAN Kelantan menyifatkan peruntukan RM50 juta kepada sekolah tahfiz yang diumumkan menerusi Belanjawan 2019, masih tidak mencukupi. Timbalan Menteri Besar, Datuk Mohd Amar Nik Abdullah berkata, walaupun angka berkenaan dilihat…

  • Competing to prove a point

    NEVER let a medical condition stop you from living life to the fullest. This is the message Sofia Lovi Ramasamy, Nik Norziehana Che Isa, and Nor Athira Sujino want to…

  • The Pompe Family

    Last Thursday, April 4th 2019 I received a shocking news that my 43 days old nephew is having a rare disease. He has undergone many operations due to birth complications…