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Taking stock of rare disease
Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their…
Rare Disease Week – Reflections with A Parent of Rare Disease Child
https://youtu.be/nKXX4I6rL5k
Penghidup wajah
Petaling Jaya: “Mungkin hanya segelintir orang kurang upaya (OKU) yang bekerja sebagai jurusolek di sini (Malaysia) namun kerjaya ini tidak asing lagi bagi masyarakat di luar negara. “Malah, saya percaya…
Rare disease unable to stop talented painter
Having a rare genetic disease does not stop Nur Fariza Abu Hassan from creating beautiful, almost life-like art that has not gone unnoticed on social media. Her pictures of landscapes,…
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
Spinal muscular atrophy – making hope real for the families
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…
