工程师盼唤醒关注溶酶体病症．单骑1千公里请愿
Read more at Sin Chew
Similar Posts
RM50 juta tak cukup
KERAJAAN Kelantan menyifatkan peruntukan RM50 juta kepada sekolah tahfiz yang diumumkan menerusi Belanjawan 2019, masih tidak mencukupi. Timbalan Menteri Besar, Datuk Mohd Amar Nik Abdullah berkata, walaupun angka berkenaan dilihat…
Time to pay more attention to the rare diseases
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
Sharing rare disease data across borders
Those who contracted Covid-19 are experiencing what it’s like to have a condition that is difficult to diagnose without clear treatment options. This is the norm for people living with…
Tak sanggup kehilangan Farish
KUANTAN: Masih segar di ingatan Mohd Nazrul Mohamed Saat, 34, dan isterinya Zuraida Baharuddin, 36, pemergian anak sulung mereka Nurul Fatin Nadilla 12 tahun lalu akibat penyakit genetik. Kini, pasangan…
Tulang rapuh bukan halangan
PADA satu majlis yang dihadiri baru-baru ini, mata terpandang pada satu susuk tubuh kecil yang duduk di atas kerusi roda. Sekali imbas, nampak seperti seorang kanak-kanak tetapi apabila diperhati lama…
Spotlight on LSD’s costly impact
TO UNDERSTAND her subjects, full-time artist Chiang Sook Siang visited the clinic where they were receiving their doses of enzyme replacement therapy every day for a month. That is why…
