工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…
While other children fully and freely enjoy their childhood, seven-year-old Muhammad Hazril Mikhail Hizar is unable to due to a rare skin disease. The boy suffers from epidermolysis bullosa or…
Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their…
Those who contracted Covid-19 are experiencing what it’s like to have a condition that is difficult to diagnose without clear treatment options. This is the norm for people living with…
PADA satu majlis yang dihadiri baru-baru ini, mata terpandang pada satu susuk tubuh kecil yang duduk di atas kerusi roda. Sekali imbas, nampak seperti seorang kanak-kanak tetapi apabila diperhati lama…
Spinal muscular atrophy (SMA) is a degenerative disease that occurs in about 1 in 11,000 live births which means about one baby is born with SMA almost every week in…