工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
A father’s love for his ill baby has pushed him to get out of his comfort zone as he strives to create awareness on rare diseases in Malaysia. Sivasangaran Kumaran,…
Abstract Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy…
https://youtu.be/nKXX4I6rL5k
On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to…
Tiada siapa menyangka di sebalik wajah ceria dan senyum manis dua beradik ini mereka sebenarnya menyembunyikan penyakit kronik yang boleh membawa maut sejak sepuluh tahun lalu. Adnin, 18, dan Aqilah…
HIS is an open letter to the minister and Ministry of Education. Inclusive education of children with disabilities is accepted internationally as a standard and right for all children. While…