Need for rare disease policy
PETALING JAYA: Once a week since December 2017, Sivasangaran Kumaran will strap his 21-month-old daughter Swathi Nisha Nair in the car seat and make the long drive from Seremban to…
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You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
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Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
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