ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28.
Once again, I’m going to appeal to all reading this to care about the needs of those living with life-threatening or chronically debilitating disorders that affect one in every four thousand people or fewer.
And yes, this is why I spoke to Malaysian Rare Disorders Society (MRDS) president Datuk Hatijah Ayob once again to see if the needs of Malaysians supported by the Society – and their caregivers – are being met.
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