You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim

Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by rare diseases and their impact on Malaysia.

Do you know that having a rare disease is quite rare, but being at risk of developing it or passing it on to your children is actually quite common? 80 per cent of rare diseases are due to our genes i.e. patients are born with it and get it from their parents although their parents might not be affected by the disease and are only carriers. Others are the result of infections, allergies and environmental causes, or are degenerative and with malignant growth.

Read more at MalayMail

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