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PEOPLE living with rare diseases face many difficulties in getting the diagnosis and care they need. These difficulties are now exacerbated by the Covid-19 pandemic. Many people with rare diseases…
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ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
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PADA satu majlis yang dihadiri baru-baru ini, mata terpandang pada satu susuk tubuh kecil yang duduk di atas kerusi roda. Sekali imbas, nampak seperti seorang kanak-kanak tetapi apabila diperhati lama…
Rare disease in Malaysia: Challenges and solutions
Abstract Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy…
