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ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
Policy IDEAS No 58 – Improving Access to Orphan Drugs in Malaysia
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…
IDEAS Launches Whitepaper on Rare Disease Policy in Malaysia
The Institute for Democracy and Economic Affairs (IDEAS) has launched a Whitepaper on Rare Disease Policy in Malaysia, by Professor Dr Thong Meow Keong and Dr Azlina Ahmad Annuar from…
RM50 juta tak cukup
KERAJAAN Kelantan menyifatkan peruntukan RM50 juta kepada sekolah tahfiz yang diumumkan menerusi Belanjawan 2019, masih tidak mencukupi. Timbalan Menteri Besar, Datuk Mohd Amar Nik Abdullah berkata, walaupun angka berkenaan dilihat…
Parents are pillars of strength for these rare disease patients
Azhar Talib and Norliza Mohd Din were delighted when their fourth child was born in 2000. Nur Lydia Afrina was a picture of contentment as she slept most of the…