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Taking stock of rare disease
Today, more than 70 countries, including Malaysia, celebrate WRDD on the last day of February to raise awareness among the general public and decision makers about rare diseases and their…
RM50 juta tak cukup
KERAJAAN Kelantan menyifatkan peruntukan RM50 juta kepada sekolah tahfiz yang diumumkan menerusi Belanjawan 2019, masih tidak mencukupi. Timbalan Menteri Besar, Datuk Mohd Amar Nik Abdullah berkata, walaupun angka berkenaan dilihat…
Sharing rare disease data across borders
Those who contracted Covid-19 are experiencing what it’s like to have a condition that is difficult to diagnose without clear treatment options. This is the norm for people living with…
Living Life in The Face of Muscular Atrophy
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…
You need to know some truths about spinal muscular atrophy and rare diseases in Malaysia — Siti Safura Jaapar, Edmund Lim
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
Why caring about rare disorders matters
ONCE again, it’s that time of the year when we commemorate the fight against rare disorders, as World Rare Disorders Day is just a week away on Feb 28. Once…
