工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
Tiada siapa menyangka di sebalik wajah ceria dan senyum manis dua beradik ini mereka sebenarnya menyembunyikan penyakit kronik yang boleh membawa maut sejak sepuluh tahun lalu. Adnin, 18, dan Aqilah…
In conjunction with this year’s World Rare Disease Day at the end of this month, the Malaysian Rare Disorders Society (MRDS) is collaborating with PuakPayong to organise a “Mingle and…
Last Thursday, April 4th 2019 I received a shocking news that my 43 days old nephew is having a rare disease. He has undergone many operations due to birth complications…
THE Malaysian Alliance of Rare Diseases Foundation takes note of the government’s effort to provide better healthcare coverage for the B40 group through a social health insurance scheme. Although the…
On the 28th of February, in conjunction with Rare Disease Day, The Institute for Democracy and Economic Affairs (IDEAS) held a Rare Disease Symposium in an effort to continue to…
TO UNDERSTAND her subjects, full-time artist Chiang Sook Siang visited the clinic where they were receiving their doses of enzyme replacement therapy every day for a month. That is why…